Module 1: Living with
Meet Jørgen
My name is Jørgen. I was born with Duchenne muscular dystrophy. Since I cannot move my arms and legs, I need help with practically everything in my daily life, i.e. going to the toilet, personal grooming, eating, dressing/undressing, and basically everything that a physically fit person does from getting up in the morning until going to bed at night.
The only thing that I don’t need help with is planning and controlling my daily life. I currently live in my privately owned 60-m² apartment. Through the BPA scheme (user-controlled personal assistance), I can find, employ and manage my assistants myself. During the night, I use the borough’s night alarm service, which is installed in my apartment and only connected to me.
You will be able to read more about Jørgen and his opinions, as the Pust course progresses. The following links are about Jørgen: